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Eric Dane on living with ALS: ‘I have one functioning arm'

Eric Dane on living with ALS: ‘I have one functioning arm'

Sinar Daily4 days ago

The man once known to millions as 'McSteamy' is now facing a reality that is anything but glamorous.
Behind Eric Dane's Hollywood smile lies a daily struggle, one marked by physical decline, emotional resilience and the quiet courage of a father, husband and actor learning to live with amyotrophic lateral sclerosis (ALS).
For years, Dane played strong, confident characters on screen, the kind who always seemed in control. But in real life, the 52-year-old actor now finds himself at the mercy of a diagnosis that has stripped away much of the control he once had over his body.
In a deeply personal sit-down with Diane Sawyer on Good Morning America that aired on June 16, the Grey's Anatomy and Euphoria star opened up about the sobering realities of living with ALS. Choking back tears, Dane revealed that the disease has left him with only one functioning arm.
'I have one functioning arm. My left side is functioning, my right side has completely stopped working. It is going, I feel like maybe a couple, a few more months and I would not have my left hand either. It is sobering,' he said.
Dane's journey with ALS, a degenerative neurological disorder that affects nerve cells in the brain and spinal cord, began subtly. It was a weakened hand that first caught his attention.
'I did not really think anything of it at the time. I thought maybe I had been texting too much or my hand was fatigued, but a few weeks later I noticed it got a little worse.
'I went and saw a hand specialist, who sent me to another hand specialist. I went and saw a neurologist and the neurologist sent me to another neurologist and said, 'This is way above my pay grade,'' Dane shared.
It would take nine months before he finally received a diagnosis. Dane's breakthrough in Hollywood came with his role as Dr Mark Sloan in the iconic television series Grey's Anatomy. Photo: X
Since publicly revealing his condition in April this year, Dane has kept the details of his struggle largely private.
'I have been diagnosed with ALS. I am grateful to have my loving family by my side as we navigate this next chapter. I feel fortunate that I am able to continue working and am looking forward to returning to the set of Euphoria next week.
'I kindly ask that you give my family and I privacy during this time,' he said at the time.
Perhaps the most haunting moment in his conversation with Sawyer came when he recounted a snorkeling trip with one of his daughters. What began as a simple day in the water turned into a moment of helplessness and heartbreak.
'She (Dane's daughter) dragged me back to the boat. I was like, breaking down in tears. I made sure she got back to the water with her friend and continued on with the snorkeling. I was just heartbroken.
'I wake up every day and I am immediately reminded that this is happening. But, I do not think this is the end of my story. I do not feel like this is the end of me,' he shared.
Those who know him best echo that sentiment, especially his wife, actress Rebecca Gayheart. Despite their tumultuous past, including a divorce filing in 2018 that was officially withdrawn this March, Gayheart has been Dane's rock throughout his diagnosis.
'We have managed to become better friends and better parents. She is probably my biggest champion and my most stalwart supporter and I lean on her,' Dane mentioned.
Together, they are raising their daughters, Billie Beatrice (15) and Georgia Geraldine (13), in their Los Angeles home; a home they have shared since 2000.
According to the ALS Association, the disorder typically appears with no known family history in 90 per cent of cases. Only five to 10 per cent are considered familial ALS. As of now, there is no known cure, though there are FDA-approved treatments that may slow its progression.

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Actor Eric Dane says disease has taken all function in right arm
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Actor Eric Dane says disease has taken all function in right arm

ALS has robbed Eric Dane (pic) of functioning in his right arm and is creeping through his left, the actor said in an emotional interview about the diagnosis he revealed in April. The symptoms began rather subtly about a year and a half ago, the Euphoria and Grey's Anatomy star told Diane Sawyer on Good Morning America in an interview that aired Monday morning. He is looking to raise awareness about the disease. 'I started experiencing some weakness in my right hand,' said Dane, 52. 'And I didn't really think anything of it at the time. I thought maybe I'd been texting too much, and my hand was fatigued.' It didn't go away, however, leading to a string of specialist visits that culminated nine months later with a diagnosis of amyotrophic lateral sclerosis, also known as Lou Gehrig's disease for the Yankees Hall of Fame player who died of it in 1941. 'A few weeks later I noticed it had gotten a little worse,' Dane recounted. 'So I went and saw a hand specialist, who sent me to another hand specialist. I went and saw a neurologist, and the neurologist sent me to another neurologist, who said, 'This is way above my pay grade.' ' Now, his right arm has 'completely stopped working,' the actor said. 'I feel like maybe a couple more months and I won't have my left hand either.' The letters ALS are burned into Dane's brain. 'I will never forget those three letters,' the veteran actor told Sawyer. 'It's on me the second I wake up.' The rare motor neuron disease affects nerve cells, weakening the muscles and leading to paralysis that eventually extends to the muscles that control speaking, eating and breathing, the Mayo Clinic explains. Dane is weathering this storm with the help of his wife, actress Rebecca Gayheart, and their daughters Billie Beatrice, 15, and Georgia Geraldine, 13. He said the diagnosis really hit home a few months ago during a boat trip with one of his daughters, when he jumped into ocean and realised he couldn't make it back to the boat on his own. 'I realised in that moment, I'm not safe in the water anymore,' he said. His daughter dragged him back, and he made sure she returned to the water to finish her snorkeling session with the guide. 'But I was just heartbroken.' Nonetheless, Dane is determined to keep working as long as he is able. 'I don't think this is the end of my story,' he told Sawyer. 'In my heart I just don't feel like this is the end of me. I'm fighting as much as I can.' At the same time, he allowed, 'There's so much about it that's out of my control.' – New York Daily News/Tribune News Service

Eric Dane on living with ALS: ‘I have one functioning arm'
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Sinar Daily

time4 days ago

  • Sinar Daily

Eric Dane on living with ALS: ‘I have one functioning arm'

The man once known to millions as 'McSteamy' is now facing a reality that is anything but glamorous. Behind Eric Dane's Hollywood smile lies a daily struggle, one marked by physical decline, emotional resilience and the quiet courage of a father, husband and actor learning to live with amyotrophic lateral sclerosis (ALS). For years, Dane played strong, confident characters on screen, the kind who always seemed in control. But in real life, the 52-year-old actor now finds himself at the mercy of a diagnosis that has stripped away much of the control he once had over his body. In a deeply personal sit-down with Diane Sawyer on Good Morning America that aired on June 16, the Grey's Anatomy and Euphoria star opened up about the sobering realities of living with ALS. Choking back tears, Dane revealed that the disease has left him with only one functioning arm. 'I have one functioning arm. My left side is functioning, my right side has completely stopped working. It is going, I feel like maybe a couple, a few more months and I would not have my left hand either. It is sobering,' he said. Dane's journey with ALS, a degenerative neurological disorder that affects nerve cells in the brain and spinal cord, began subtly. It was a weakened hand that first caught his attention. 'I did not really think anything of it at the time. I thought maybe I had been texting too much or my hand was fatigued, but a few weeks later I noticed it got a little worse. 'I went and saw a hand specialist, who sent me to another hand specialist. I went and saw a neurologist and the neurologist sent me to another neurologist and said, 'This is way above my pay grade,'' Dane shared. It would take nine months before he finally received a diagnosis. Dane's breakthrough in Hollywood came with his role as Dr Mark Sloan in the iconic television series Grey's Anatomy. Photo: X Since publicly revealing his condition in April this year, Dane has kept the details of his struggle largely private. 'I have been diagnosed with ALS. I am grateful to have my loving family by my side as we navigate this next chapter. I feel fortunate that I am able to continue working and am looking forward to returning to the set of Euphoria next week. 'I kindly ask that you give my family and I privacy during this time,' he said at the time. Perhaps the most haunting moment in his conversation with Sawyer came when he recounted a snorkeling trip with one of his daughters. What began as a simple day in the water turned into a moment of helplessness and heartbreak. 'She (Dane's daughter) dragged me back to the boat. I was like, breaking down in tears. I made sure she got back to the water with her friend and continued on with the snorkeling. I was just heartbroken. 'I wake up every day and I am immediately reminded that this is happening. But, I do not think this is the end of my story. I do not feel like this is the end of me,' he shared. Those who know him best echo that sentiment, especially his wife, actress Rebecca Gayheart. Despite their tumultuous past, including a divorce filing in 2018 that was officially withdrawn this March, Gayheart has been Dane's rock throughout his diagnosis. 'We have managed to become better friends and better parents. She is probably my biggest champion and my most stalwart supporter and I lean on her,' Dane mentioned. Together, they are raising their daughters, Billie Beatrice (15) and Georgia Geraldine (13), in their Los Angeles home; a home they have shared since 2000. According to the ALS Association, the disorder typically appears with no known family history in 90 per cent of cases. Only five to 10 per cent are considered familial ALS. As of now, there is no known cure, though there are FDA-approved treatments that may slow its progression.

Heads up: How screen time and slouching could lead you to Dropped Head Syndrome
Heads up: How screen time and slouching could lead you to Dropped Head Syndrome

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time7 days ago

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Heads up: How screen time and slouching could lead you to Dropped Head Syndrome

Dropped Head Syndrome (DHS) is a condition caused by weakness in the neck's extensor muscles, which can lead to a forward slump of the head until the chin rests on the chest. Malaysians ranking among the world's top in daily screen time, clocking in an average of eight hours a day, four of which are spent on mobile devices, we might be unknowingly setting ourselves up for Dropped Head Syndrome (DHS). Photo: Canva Little do most of us realise that our everyday habits such as constant slouching, skipping regular physical activity, and endless hours spent looking down at our phones or poorly positioned computer screens, might be coming at a hidden cost. One that could literally make your head drop forward and stay that way. This is the uncomfortable reality of Dropped Head Syndrome (DHS), a condition caused by weakness in the neck's extensor muscles, which can lead to a forward slump of the head until the chin rests on the chest. Left untreated, this posture isn't just a passing ache, it can become permanent. And with Malaysians ranking among the world's top in daily screen time, clocking in an average of eight hours a day, four of which are spent on mobile devices, we might be unknowingly setting ourselves up for it. THE SPINE DOESN'T LIE According to Consultant Spine Surgeon Dr Lim Kang Kai from Sunway Medical Centre, a combination of bad habits is contributing to poor spinal health. 'Even simple daily activities such as getting in and out of bed, driving, bending down to wear your shoes, or picking an object from the floor can be damaging if the proper techniques are not observed," he explained. What's worse, he added, is how lack of exercise and weak core muscles tend to 'drive the nail in the coffin.' DHS, he explained, is caused by severe weakness or deficiency in the neck's back muscles, the extensor muscles. This causes the head to involuntarily fall forward, making it difficult to maintain an upright position. Consultant Spine Surgeon Dr Lim Kang Kai The signs? A head that's tilted downward, a painless chin-on-chest posture, and a neck that appears elongated. People with DHS often struggle to lift their heads while sitting or standing, although lying down can temporarily relieve the position. Dr Lim said that DHS is classified as a neuromuscular disease, similar to conditions like Parkinson's, myasthenia gravis, ALS (amyotrophic lateral sclerosis), polymyositis, and genetic myopathies. It can also be linked to degenerative causes such as cervical spondylosis or age-related muscle loss (sarcopenia). 'When the cause is unknown, it is called isolated neck extensor myopathy,' he added. While DHS is more common among the elderly, Dr Lim warned that it isn't age-exclusive. The symptoms may appear suddenly or progress over months and years, depending on the root cause. 'Younger individuals may be affected more rapidly due to immune-mediated neuromuscular conditions or acute neurological causes, compared to older individuals whose cases are often linked to chronic conditions. although the reverse can be true for both age groups.' TREAT FIRST Fortunately, DHS can often be managed through non-surgical treatments at the early stage. 'A supportive neck collar coupled with physical therapy may be of tremendous help. In certain inflammatory conditions, medications may be used to reduce muscle inflammation. Immunotherapy or other disease-specific medications may be part of the treatment for DHS,' said Dr Lim. But in more stubborn or severe cases, surgical intervention like spinal fusion surgery may be necessary to correct deformity and restore proper head posture. Dr Lim also clarified that DHS should not be confused with everyday neck muscle sprains or trauma, although they might look similar, the underlying causes and treatments differ. 'While both conditions can involve neck weakness, their causes, mechanisms, and treatments are very different,' he said, pointing out that DHS is usually a gradual process linked to neuromuscular issues, while sports injuries happen suddenly and are treated with rest, NSAIDs, and physiotherapy. When it comes to recovery, age plays a role. 'Younger people have the capacity to recover faster, while the elderly heal slower,' Dr Lim noted. Rehabilitation Medicine Specialist Dr Foong Chee Choong REHABILITATION For those already battling the condition, Rehabilitation Medicine Specialist Dr Foong Chee Choong, also from Sunway Medical Centre, explained that therapy focuses on restoring flexibility and strength, particularly in the neck extensor muscles, torso, and hips to improve posture. Patients with severe neck weakness might benefit from wearing a cervical collar to maintain proper head alignment. 'Individuals with DHS who experience neck pain may also benefit from physiotherapy modalities such as heat therapy and electrotherapy for pain relief,' said Dr Foong. However, he cautioned that the effectiveness of these treatments largely depends on what's causing the condition in the first place. Those with fixed flexion deformity and failed rehab outcomes may need to consult a spine surgeon for possible corrective surgery. Echoing Dr Lim, Dr Foong said DHS is mostly triggered by neurological diseases and degenerative spinal issues, both of which are difficult to prevent. But lifestyle matters. 'Excessive use of smartphones and other electronics could aggravate the issue. 'Fixed flexion deformity of the neck is preventable by practising proper body mechanics and regular neck exercises," he said. Still, he noted, poor posture and improper sleeping positions more commonly cause neck and back pain, rather than full-blown DHS. Ultimately, whether DHS is reversible or not hinges on its cause, early intervention and proper diagnosis is crucial. The message is clear: our posture, daily movements, and tech habits can shape or misshape our bodies in lasting ways. While most of us worry about phone addiction, we may be ignoring its physical toll. So maybe it's time to straighten up, stretch out, and look up — literally. More Like This

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