Sickle Cell Awareness: Hampton Roads teen siblings diagnosed at birth
NORFOLK, Va. (WAVY) — Sickle Cell Disease is the most common inherited blood disorder in the United States, affecting the lives of 100,000 people, per the Centers for Disease Control and Prevention. Teen siblings, Morgan Tarrer, 15, and Olivia Tarrer, 19, of Virginia Beach represent that number.
Data from the CDC also shows approximately 1 in 365 Black or African American newborns are born with SCD, which is the case for Morgan and Olivia, whose parents are carriers. The two were diagnosed at birth and are left with no choice but to embrace their condition as there is still no cure.
'So I have an abnormality of my Hemoglobin,' says Khristina Reid, Virginia Sickle Cell Network founder and mother of Morgan and Olivia. 'So I carry the C-gene, and Olivia and Morgan's dad, he carries the S-gene. Together our children have both genes. The S and C-gene. So they live with Hemoglobin S-C Disease.
While there have been many advances in treating sickle cell disease, the reality for the siblings and others is reduced life expectancy and the probability of health complications.
'It's something that I've found is always on your mind,' says Olivia. 'I'm in college. I'm up in New York, so I'm very far from my family. And I've realized, especially living in dorms, being around with friends, that you have to be extra, extra careful. Because with sickle cell, you're very, immunocompromised.'
CDC finding reveal, more than 90% of people diagnosed with sickle cell in the US are non-Hispanic black or African American.
'So the reason is, sickle cell disease was the body's kind of defense mechanism against malaria,' says Reid. 'So you will find the highest prevalence of sickle cell disease in your, locations that are near the equator. So Nigeria right now is the, largest country, with the largest population of people living with sickle cell disease.'
Those diagnosed with SCD can range in symptoms from frequent infections, anemia, episodes of pain, problems with vision and tiredness. Olivia's says she experiences a great deal of fatigue. While she remains optimistic, there's always concern about her years ahead.
'That has been a problem in school for me,' she says. 'I remember last not last year, but my senior year of high school. All through high school, it was a struggle getting to school because we had it so early. I think the most challenging part is uncertainty about the future. I'm in film. I'm a NYU film, and it's a very physical job. It's also a very, You have to be up early, go to sleep late. And that's when I do that. When I am on set, it's very strenuous, and I worry that I won't be able to be at the same caliber, as my peers.'
For information on the Virginia Sickle Cell Network, click here.
Copyright 2025 Nexstar Media, Inc. All rights reserved. This material may not be published, broadcast, rewritten, or redistributed.
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