Combating Isolation For Adults With Intellectual And Developmental Disabilities
Social isolation and loneliness have been pervasive public health concerns in America, especially impacting adults with intellectual and developmental disabilities (IDD). Both mental and physical health are impacted by isolation and loneliness with research indicating that it can be more harmful than smoking, increasing the risk of depression, heart disease, and premature death. While the emotional toll of isolation has been acknowledged in the broader population, adults with IDD often experience an even deeper, more persistent sense of isolation—stemming from systemic exclusion, lack of accessible opportunities, and insufficient support networks.
People with IDD often experience higher rates of loneliness due to environments that lack adequate inclusion. People in the general population often find connection through clubs, community centers, faith communities, and other local activities. These spaces offer natural opportunities for social engagement and a sense of belonging. However, for adults with IDD, these same settings are not always accessible to people with IDD, especially without adequate support. As a result, many individuals with IDD are left with limited opportunities to participate meaningfully in community life, leading to greater isolation and fewer chances to build lasting social connections.
Research indicates that social isolation in individuals with IDD is associated with increased mental health challenges, including anxiety and depression. A lack of everyday interaction, meaningful engagement, and community inclusion results in a pattern of inactivity and dependence. This impacts an individual's overall health, well-being and growth. This invisible crisis is an area where more focus should be directed to shed light on ways to address this issue and mitigate loneliness.
A feature issue on loneliness and people with intellectual disabilities shares personal stories, research, and more on this topic.
Structured social programs tailored for adults with IDD play a critical role in alleviating loneliness. For example, community day programs provide safe, supportive environments where individuals can build friendships, gain self-confidence, and participate in engaging activities.
Social programs are more than an antidote for loneliness—they provide a pathway for people with IDD to develop meaningful lives. Our Place of New Trier Township is a social support program that provides innovative programs for over 120 individuals with IDD. These group activities help participants develop essential life and job skills, supporting them in building greater autonomy and a strong sense of contribution. Activities include going to local restaurants for community lunch, creative art projects, volunteer opportunities, and structured recreational programs that foster emotional intelligence, communication skills, and self-determination. When people with IDD have the support they need, they're more likely to engage in their communities—supporting neighborhood businesses and giving back through volunteer work.
Studies support this holistic benefit. A 2021 study in Frontiers in Psychology found that adults with IDD who participated in community-based social and recreational programs reported greater life satisfaction and lower rates of loneliness. Importantly, these programs also contribute to a greater sense of inclusion and belonging—two factors strongly linked to long-term health and quality of life.
Enacting community engagement and inclusion is a practice. Investing in social programs for people with IDD is strategic. Communities thrive when all members are empowered to contribute. Inclusive programs reduce long-term care costs, increase employment, and strengthen civic bonds.
Nonprofit organizations like Our Place have been at the forefront of cultivating social opportunities. This work requires support from public and private sectors, including businesses, local governments, and philanthropists who recognize the long-term value of inclusion. Working together, we can prevent the loneliness crisis among adults with IDD. By intentionally investing in social programs, we can reduce isolation and increase inclusion. We can create spaces where adults with IDD form true friendships, learn critical skills, and live self-directed, fulfilling lives. Everyone deserves connection, purpose, and a place to belong.
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