Latest news with #HemingWillis

6 days ago
- Entertainment
Bruce Willis' wife Emma Heming says she feels 'profoundly sad' on Father's Day
The wife of Bruce Willis, shared a touching message on Instagram Sunday, honoring not only her husband but also other dads "living with disability or disease." Heming Willis, who shares daughters Mabel Ray and Evelyn Penn with the actor who was diagnosed with aphasia in 2022 and frontotemporal dementia (FTD) in 2023, posted a photo of Bruce cuddling one of their girls, along with a moving caption. "Happy Father's Day to all the dads living with disability or disease, showing up in the ways they can and to the children who show up for them," she wrote in the caption. "What Bruce teaches our girls goes far beyond words. Resilience, unconditional love, and the quiet strength in simply being present. This photo says so much. Love deepens. It adapts. It stays, even when everything else changes." Heming Willis also reflected on the emotional complexity of the day. "But to be fair to myself, these symbolic days stir up a lot. I'm profoundly sad today. I wish, with every cell in my body, that things could be different for him and lighter for our family," she continued. Referencing a phrase often used in the frontotemporal dementia (FTD) community, she added, "As they say in our FTD community, It is what it is.' And while that might sound dismissive, to me, it's not. It grounds me. It helps me return to the acceptance of what is and not fight this every step of the way like I used to." Concluding the post, she wrote, "Today, let's celebrate the badass dads, those who are here, and those we carry with us 💙 Onward." This isn't the first time Heming Willis has spoken publicly about the emotional realities of life since Willis' diagnosis. Last December, she shared a throwback photo marking the anniversary of their relationship, opening up about how those milestones have changed. "17 years of us ♥️," she wrote at the time. "Anniversaries used to bring excitement -- now, if I'm honest, they stir up all the feelings, leaving a heaviness in my heart and a pit in my stomach." "I give myself 30 minutes to sit in the 'why him, why us,' to feel the anger and grief," she continued. "Then I shake it off and return to what is. And what is… is unconditional love." "I feel blessed to know it, and it's because of him," she said. "I'd do it all over again and again in a heartbeat 💞." In addition to the two daughters he shares with Heming Willis, Willis is also a father to Rumer, Scout and Tallulah, whom he shares with ex-wife Demi Moore. Heming Willis is currently working on a book about caregiving, set to be released in 2025.


Miami Herald
6 days ago
- Entertainment
- Miami Herald
Bruce Willis' wife Emma Heming Willis shares poignant message on Father's Day
Emma Heming Willis is sharing a poignant message on this Father's Day. Alongside a photo of one of the two daughters she shares with husband, actor Bruce Willis, hugging her father, Heming Willis wrote 'Happy Father's Day to all the dads living with disability or disease, showing up in the ways they can and to the children who show up for them.' Heming Willis continued saying that Willis teaches their daughters, Mabel and Evelyn, lessons that go 'far beyond words.' 'Resilience, unconditional love, and the quiet strength in simply being present,' Heming Willis wrote, noting that the pictured she shared of the father and daughter 'says so much.' 'Love deepens. It adapts. It stays, even when everything else changes,' the model and activist shared. 'But to be fair to myself, these symbolic days stir up a lot.' 'I'm profoundly sad today. I wish, with every cell in my body, that things could be different for him and lighter for our family.' In March 2022, the Willis family announced in a joint statement that the actor had been diagnosed with aphasia, a condition that affects his ability to communicate. A year later, in February 2023, the family shared another statement revealing that Willis received another diagnosis of frontotemporal dementia. According to the Association for Frontotemporal Degeneration, FTD 'represents a group of brain disorders caused by degeneration of the frontal and/or temporal lobes of the brain.' Willis has since retired from Hollywood and Heming Willis has become an advocate for her husband and caregivers. 'As they say in our FTD community, 'It is what it is,'' Heming Willis continued in her Father's Day message. 'And while that might sound dismissive, to me, it's not. It grounds me.' The mom of two says that saying 'helps me return to the acceptance of what is and not fight this every step of the way like I used to. Today, let's celebrate the bad*** dads, those who are here, and those we carry with us. Onward.' In addition to Mabel and Evelyn, Willis is also a father to Rumer Willis, Tallulah Willis, and Scout LaRue Willis with his ex-wife Demi Moore.
Yahoo
08-06-2025
- Entertainment
- Yahoo
Bruce Willis ‘found ways to soldier on with acting' amid frontotemporal dementia diagnosis
Bruce Willis was working with directors to continue acting before his diagnosis with frontotemporal dementia (FTD) was made public, his wife, Emma Heming Willis, reportedly claims in her forthcoming book. In March 2022, Willis's family announced that the actor had been diagnosed with aphasia, a language disorder, and would be stepping away from acting as the condition was 'impacting his cognitive abilities'. Nearly a year later, in February 2023, the family provided a more specific diagnosis: FTD, a degenerative brain condition that impacts communication and behavior. The family described FTD as a 'cruel disease' for which there is no cure. However, reports that Heming Willis's book The Unexpected Journey, which she describes as being 'not a memoir but under the category of self-help', will reveal how the actor continued to work despite his condition. 'Before making his condition public, Willis had found ways to soldier on with his acting, having directors scale down his dialogue and getting a trusted friend to feed him his lines through an earpiece on films such as Assassin and the Detective Knight series,' the Australian news site claims. The Independent has contacted representatives for Harding Willis, Willis and Lionsgate for comment. Assassin (2023) and the Detective Knight series (2022-23) were among Bruce's final projects before his retirement from acting. The news site points out that Willis's deterioration wasn't immediately obvious because of the stutter he'd suffered from since childhood. 'It's how I got my sense of humour, because I realised, yeah I stutter, but I could make people laugh by doing stupid stuff,' he once told interviewer Michael Parkinson. Willis first married actor Demi Moore in 1987, and shares three daughters with the actor: Rumer, Scout, and Tallulah. The couple divorced in 2000 but remained close friends and continue to spend time together with their blended families. In 2009, Bruce married British-American model and actor Heming Willis, with whom he shares two daughters, Mabel and Evelyn. Revealing her book's cover on Instagram in April, Heming Willis wrote: 'Born from grief, shaped by love, and guided by purpose, this is the book I needed back when Bruce was first diagnosed and I was frozen with fear and uncertainty. 'This is the book I trust will help the next caregiver. It is filled with support, insight, and the hope needed to navigate this journey. 'This book is for all of us finding our way through the unknown with love, grit, and courage. You are not alone.' The Unexpected Journey is out September 9.


Fox News
28-05-2025
- Entertainment
- Fox News
Bruce Willis' wife felt 'lost and isolated' caring for him after devastating dementia diagnosis
Emma Heming Willis' life was forever changed the moment her beloved husband, Bruce Willis, was diagnosed with frontotemporal dementia in 2022. While speaking at the Women's Alzheimer's Movement Forum in Las Vegas on Monday, the mom of two opened up about the isolating moment that inspired her upcoming book, "The Unexpected Journey." "On the day Bruce got his diagnosis, we left the doctor's office with a pamphlet and a hollow goodbye. No plan, no guidance, no hope, just shock," she told the crowd during the forum, per People. "The future we imagined simply vanished, and I was left trying to hold my family together, raise our two young daughters, and care for the man I love while navigating a disease I barely understood." In March 2022, it was announced that Willis would be "stepping away" from his acting career due to an aphasia diagnosis. It was later announced that he had been diagnosed with frontotemporal dementia. "I felt lost, isolated and scared," Heming Willis, who was being honored for her advocacy for caregiving, said. "What I needed in that moment at that appointment wasn't just medical information. I needed someone to look me in the eye and say, 'This feels impossible right now, but you will find your footing. You will survive this and you will grow because of it.'" The author will release her book this September. "The book is the roadmap I wish someone had handed me on the day in 2022," she said. "I wrote it for other caregivers who are desperate for answers, aching for support, and wanting to be seen and wondering how they're going to make it through." "I've had access to world-class experts because of who Bruce is, and I know that's a privilege, so I didn't want to keep that information to myself… I have a megaphone and resources that others don't." In April, Heming Willis - who shares daughters Mabel Ray Willis, 13, and Evelyn Penn Willis, 11 - unveiled the cover of her book on social media and gave followers a glimpse of what life has been like since her husband's diagnosis. "Born from grief, shaped by love, and guided by purpose, this is the book I needed back when Bruce was first diagnosed, and I was frozen with fear and uncertainty," she penned on Instagram about the book. "This is the book I trust will help the next caregiver. It is filled with support, insight, and the hope needed to navigate this journey." The author shared a sweet black-and-white photograph of her and Bruce on the book cover, as she longingly looked at her husband with all smiles. "I wrote the book I wish someone had placed in my hands the day we got the diagnosis," her second photo on Instagram read. "This book is for all of us finding our way through the unknown with love, grit, and courage. You are not alone." During the forum, Heming Willis also stressed the importance of caring for caretakers. "We should be talking about this so much more because at some point, we will be caring for someone that we love, or we might need care ourselves. So this is a really important conversation that hopefully, one day, the government will take seriously."
Yahoo
20-04-2025
- Entertainment
- Yahoo
Bruce Willis Fans React to Wife's Big Update
Bruce Willis fans are overjoyed to hear the latest news from his wife, Emma Heming Willis. On April 17, she shared an exciting update on Instagram. "I'm honored to share the cover of my first book, 'The Unexpected Journey: Finding Strength, Hope and Yourself on the Caregiving Path,'" Heming Willis captioned a post. "Born from grief, shaped by love, and guided by purpose, this is the book I needed back when Bruce was first diagnosed and I was frozen with fear and uncertainty. This is the book I trust will help the next caregiver. It is filled with support, insight, and the hope needed to navigate this journey," she continued. Heming Willis has been the primary caregiver for her husband, who was diagnosed with aphasia in 2022. The following year, the Willis family shared the news that the Die Hard actor had been diagnosed with frontotemporal dementia. According to the Mayo Clinic, frontotemporal dementia can affect a person's behavior, their speech, and their overall body movement. Willis, 70, is "not totally verbal" and has a variety of other symptoms caused by the disease. Fans reacted to the news in the comments section of the post. "I can't wait to read this! I am just starting my journey of caregiving for my husband with BvFTD. You're an inspiration," one person wrote. "Thank you for the sneak peek of the book. Thank you for writing this book. I'm sorry that you found yourself in the caregiver situation. I'm positive it will help many, many people. The journey I was on ended 3 years ago on 4/25/22. God bless you Bruce and your wonderful family," someone else said. "This book is so needed. Can't wait for it to hit the world, Emma," a third comment read. Heming Willis' new book will hit shelves on Sept. 9, 2025.