Latest news with #BoneCancerResearchTrust
The National
6 days ago
- Entertainment
- The National
How Niamh Jobson's life is inspiring bone cancer treatment fundraising
Still raw from losing his sister in January, Finn has dedicated himself to achieving Niamh's selfless wish to help others suffering from osteosarcoma, a particularly vicious bone cancer which mostly affects children and young adults under 20. Despite fighting the disease for more than seven years and even persevering with her flourishing music career after her leg was amputated, Niamh died just days short of her 23rd birthday. READ MORE: 'Live like Niamh': Glasgow DJ's tragic death inspires cancer research fund Only 24 out of every 100 people are alive five years after a diagnosis of metastatic osteosarcoma, yet treatment options have remained largely unchanged for 50 years. In honour of Niamh, however, a dedicated osteosarcoma fund has now been set up. Established within the Bone Cancer Research Trust, the fund's sole purpose is to help drive progress in treatment options and to create a better future for others diagnosed with this devastating illness. Steering its inception is 20-year-old Finn who is working hard to make the launch night a highlight of the Scottish gig scene. He hopes its success will lead to more such events and help grow the fund while also paying tribute to Niamh's gift for music. He told the Sunday National the fundraising was actually Niamh's idea. 'She never complained but she thought we need to sort this out and give other people a chance,' he said. 'She thought if it couldn't be her, then something had to be done for other people as the treatment is brutal and has not been advanced for far too long. 'Our mission is to change the whole awareness of osteosarcoma as we want to see some advancements in research to give young people the chance at life that they deserve.' Finn said it was Niamh's personality that was keeping him going through his devastation. 'If I did not turn the grief into a positive thing then I can literally hear Niamh telling me to shut up, stop moping around and start getting things done. It is Niamh that is keeping us all going.' As a tribute to her career as a DJ, the launch party is being held at SWG3 in Glasgow on June 28 at the venue's Warehouse and Garden Terrace, featuring sets from Kairogen, Danny Greenman, Timescape, VXYX, Harry Mawby and LAZLO – a line-up of artists who played with Niamh, knew her well and were inspired by her sound and spirit. READ MORE: SNP MSP Ruth Maguire 'excited to return to work' after revealing she's cancer free Finn said Niamh, who grew up on the Isle of Eigg, had always had a great interest in music, learning to play the piano, double bass, fiddle, guitar and bass guitar. She was the first person to do a music production course at high school in Mallaig and played gigs with traditional bands before moving into techno. She first cut her teeth in this genre at the revered Sub Club in Glasgow, later making her debut at Subculture and performing solo and back-to-back at Slam's Return to Mono residency. Despite enduring multiple rounds of intense chemotherapy and the eventual loss of her left leg, she remained dedicated to her craft – performing, producing, and co-hosting the acclaimed Dub Series radio show with close friend and fellow DJ Kairogen. Finn said she kept going through excruciating pain and the indignities of her treatment through sheer will and determination. 'She just took extra painkillers to get through her sets. She was amazing,' Finn said. He hopes that at least 200 or 250 people will turn up at the launch venue which has a capacity of 500. The aim is to turn it into a series of gigs that will continue to raise much-needed money for the fund. 'Creating this fund and launching it in a very 'Niamh' manner, we will be able to assist her dream of helping kids in this position get another chance at life, while also pushing her unique underground club techno sound to the people of Glasgow,' said Finn. He is being supported by the rest of his family and friends. The sibling's father Jonny said: 'Niamh was, and continues to be, an inspiration to so many who knew her. Throughout everything she had to face, from 10 months of chemo and the removal of her thigh bone and her knee joint when she was just 17, to losing her leg entirely in 2023, she never complained, never asked 'why me' and never gave up fighting for her dreams. 'She forged herself a career as a DJ, she completed her sound engineering degree and passed her driving test all while facing continuous setbacks and agonies. 'Through this fund, her devastated family hope that her suffering will not be in vain and that other young people be spared the indignities, pain and suffering that Niamh bore with such defiance and bravery.' A spokesperson for the Bone Cancer Research Trust said: 'Our heartfelt thanks go out to the Jobson family who will be supporting vital research in memory of their much-loved Niamh. 'Through the Niamh Jobson Research Fund, a special fund of the Bone Cancer Research Trust, Niamh's loved ones will honour her wish of improving treatments and outcomes for others.' Tickets for the June 28 launch at Glasgow's SWG3 are are available through Skiddle and Resident Advisor. They are priced at what you can afford – £10.50, £15.50 or £20.50.
The National
06-06-2025
- Entertainment
- The National
SWG3 event to launch cancer fund in memory of Scottish DJ Niamh Jobson
Glasgow-based DJ, producer and sound engineer Niamh Jobson died on January 17, just five days before her 23rd birthday. The popular musician died after many years of living with osteosarcoma, a particularly vicious childhood bone cancer. The Niamh Jobson Research Fund – will officially launch on Saturday June 28, at Glasgow's SWG3, to support research into osteosarcoma. READ MORE: 'The British media undermines anything Scottish and assimilates it' Established as a dedicated Osteosarcoma Fund within the Bone Cancer Research Trust, the fund's sole purpose is to help progress treatment options that have remained largely unchanged for over 50 years, the charity says. Born in Hong Kong, Jobson spent part of her childhood on the Isle of Eigg before moving to Glasgow and becoming immersed in the city's club culture. She kicked off her DJ career performing in Glasgow's Sub Club. She also had a show on Radio Buena Vida with fellow Glasgow DJ Kairogen. The launch party at SWG3 will run from 2pm until 8pm across the venue's Warehouse and Garden Terrace, featuring sets from Kairogen, Danny Greenman, Timescape, VXYX, Harry Mawby and LAZLO – a line-up of artists who played with Jobson, knew her well, and were inspired by her sound and spirit. Through this fund, Jobson's family hopes to transform that loss into lasting impact. Speaking on the launch of the fund, Niamh's brother Finn Jobson reflected on her legacy and the drive behind the initiative. He said: 'I will never get over the loss of my best friend. Watching her suffer from this heinous disease, while powering through with her impressive and promising career cut far too short by osteosarcoma. "Creating this fund and launching it in a very 'Niamh' manner, we will be able to assist her dream of helping kids in this position get another chance at life, while also pushing her unique underground club techno sound to the people of Glasgow. She was my partner in crime and we will carry on living like Niamh.'
The Herald Scotland
05-06-2025
- Entertainment
- The Herald Scotland
Research fund in memory of late Glasgow DJ to launch at SWG3
The foundation will mark the beginning of a mission to support vital research into osteosarcoma, with the disease primarily affecting young people. It has been established as a dedicated Osteosarcoma Fund within the Bone Cancer Research Trust and its sole purpose is to help drive progress in treatment options that have been remained largely unchained for more than 50 years and to create a better future for others diagnosed with the illness. Niam was known for her articulate and emotionally rich approach to techno and she remained dedicated to it despite undergoing multiple rounds of intense chemo and the loss of her left leg. She performed, produced and co-hosted the acclaimed Dub Series radio show with close friend DJ Kairogen. Read More The launch party at SWG3 will run from 2pm–8pm across the venue's Warehouse and Garden Terrace, featuring sets from Kairogen, Danny Greenman, Timescape, VXYX, Harry Mawby and LAZLO – a line-up of artists who played with Niamh, knew her well, and were inspired by her sound and spirit. Niamh, who was born in Hong Kong and spent part of her childhood on the Isle of Eigg before moving to Glasgow where she first cut her teeth at Sub Club. Speaking on the launch of the fund, Niamh's brother Finn Jobson reflects on her legacy and the drive behind the initiative: 'I will never get over the loss of my best friend. Watching her suffer from this heinous disease, while powering through with her impressive and promising career cut far too short by osteosarcoma. 'Creating this fund and launching it in a very Niamh manner, we will be able to assist her dream of helping kids in this position get another chance at life, while also pushing her unique underground club techno sound to the people of Glasgow. She was my partner in crime and we will carry on living like Niamh.' Tickets are on sale now here, with all money raised going to the research fund.
Scottish Sun
01-05-2025
- Health
- Scottish Sun
I thought I had just hurt myself at football but in reality the truth was much worse
He has since raised over £13,000 for the Bone Cancer Research Trust 'INCREDIBLE SHOCK' I thought I had just hurt myself at football but in reality the truth was much worse Click to share on X/Twitter (Opens in new window) Click to share on Facebook (Opens in new window) A MAN says football saved his life after a groin injury during a match led to his bone cancer diagnosis. Jason Deans, 38, a semi-professional footballer, suffered the injury during a game and decided to go to the GP after weeks of "pain and discomfort". Sign up for Scottish Sun newsletter Sign up 5 Jason Deans in hospital after his diagnosis Credit: SWNS 5 He said football saved his life after an injury during a match led to his cancer diagnosis Credit: SWNS 5 Jason's last run before major surgery Credit: SWNS An MRI scan later revealed a 5cm tumour in his pelvis area and, after a biopsy, he was told he had chondrosarcoma - a type of bone cancer. He underwent surgery six weeks later, which saw 10 cm of his pelvis removed, and despite the surgery's success, the former sportsman had to "relearn how to walk and run". But now thanks to the support of his wife, Nicola, 38, and two children, Caris, 11, and Caelan, six, on Sunday, April 27, Jason completed the London Marathon, running the 26-mile route in 3 hours 46 minutes. He has since raised over £13,000 for the Bone Cancer Research Trust. Jason, a full-time recruitment manager from Falkirk, Scotland, said: "It was my hardest battle. "When I received my diagnosis, I didn't think I'd get back to my usual fit self. It felt like a hand grenade went off in my life. I just couldn't believe it. All I kept thinking was how I was going to tell my family that I have cancer Jason Deans "It was an incredible shock, but I knew I had to keep fighting for my family. "I had a strong support system around me who helped me to walk and run again. "Completing the London Marathon with my fastest time ever was just incredible. "I feel like nothing is impossible now." 'These scars saved my life, why would I hide them' inspiring cancer survivor hailed 'amazing and so beautiful' as she proudly goes topless after double mastectomy on This Morning Jason was diagnosed with chondrosarcoma in February 2021 after an MRI revealed a 5cm tumour in his pelvis. He had suffered a "groin injury" during a football game in September 2020, which prompted a visit to the doctors. "It felt like a hand grenade went off in my life," he said. "I just couldn't believe it. "All I kept thinking was how I was going to tell my family that I have cancer." Chondrosarcoma is the most common type of bone cancer and can affect any part of the body. Although the general prognosis is good, those with higher grades face a 60 per cent survival rate after five years. It was my hardest battle... It was an incredible shock, but I knew I had to keep fighting for my family Jason Deans Jason had a grade I tumour and in March 2021, the mass was successfully removed along with 10 cm of his pelvis. He remained in hospital for 11 days afterwards, and on April 19, 2021, was told he was cancer-free. "It was a very difficult experience," Jason said. "I was rarely allowed visitors in the hospital, and all I wanted was to see my family. "But to hear I was cancer-free was extremely liberating. "From then on, I started setting myself small goals that were important to me. What is Chondrosarcoma and what are the symptoms? Chondrosarcoma is a type of primary bone cancer (also called bone sarcoma). Sarcomas are rare cancers that develop in the supporting tissues of the body. Supporting tissues include bone, cartilage, tendons, fat and muscle. Symptoms of chondrosarcoma Pain is the most common symptom of bone cancer, including chondrosarcoma. But symptoms may vary, depending on what part of the body the cancer is in. The area may be: swollen painful when touched Primary bone cancer is sometimes found when a bone breaks after a minor fall or accident. This is because it has been weakened by the cancer. Most of the time, these symptoms are caused by other conditions that are more common than bone cancer. But if you have any swelling or unexplained bone pain, get it checked by your GP. Tell your GP if the pain happens at night and when you are resting. Credit: MacMillan "And I never wanted to take life for granted again." Jason described the recovery process as a "complete struggle", and for two months, the former sportsman relied on walking aids to get around as he "couldn't run or walk". He added: "I just didn't feel like myself. But I tried not to push myself and I kept fighting." It wasn't until May 2021 that Jason completed his first solo walk, and August when he took on his first kilometre run. Jason began setting goals for longer distances, 5km in February 2022, and a half marathon in October 2024. "There were a few mental blocks along the way and a few times when I was close to giving up," he said. To hear I was cancer-free was extremely liberating. From then on, I started setting myself small goals that were important to me. I never wanted to take life for granted again Jason Deans One particular challenge was in January 2024, when the right side of his hip got stuck in his pelvis. "I was out for six months, and it was a dark time," he added. "I often thought if I was ever going to run again." Despite this, Jason never let it get him down and began training for the marathon 22 weeks in advance. He shaved eight minutes off his personal best after competing in the London Marathon in 2017. Jason dedicated the run to Andy's bones fund - a branch of the Bone Cancer Research Trust - and raised £13,000. "It was the most incredible feeling," he said. "I was just thinking about my friends and family to help me push through. "My body was aching and I was shedding tears. But I hope my efforts get us a step closer to finding a cure for chondrosarcoma." 5 Jason completed the London Marathon last month in just 3 hours 46 minutes Credit: SWNS
Daily Record
01-05-2025
- Health
- Daily Record
Scots dad's groin injury at football game led to bone cancer diagnosis
A Scots dad says football saved his life after a groin injury during a match led to his bone cancer diagnosis. Jason Deans, 38, a semi-professional footballer, suffered the injury during a game and decided to go to the GP after weeks of "pain and discomfort". An MRI scan later revealed a 5cm tumour in his pelvis area and, after a biopsy, he was told he had chondrosarcoma - a type of bone cancer. He underwent surgery six weeks later, which saw 10 cm of his pelvis removed, and despite the surgery's success, the former sportsman had to "relearn how to walk and run". But now thanks to the support of his wife, Nicola, 38, and two children, Caris, 11, and Caelan, six, on Sunday, April 27, 2025, Jason completed the London Marathon, running the 26-mile route in 3 hours 46 minutes. He has since raised £13,000 for the Bone Cancer Research Trust. Jason, a full-time recruitment manager from Falkirk, said: "It was my hardest battle. "When I received my diagnosis, I didn't think I'd get back to my usual fit self. It was an incredible shock, but I knew I had to keep fighting for my family. "I had a strong support system around me who helped me to walk and run again. Completing the London Marathon with my fastest time ever was just incredible. "I feel like nothing is impossible now." Jason was diagnosed with chondrosarcoma in February 2021 after an MRI revealed a 5cm tumour in his pelvis. He had suffered a "groin injury" during a football game in September 2020, which prompted a visit to the doctors. "It felt like a hand grenade went off in my life," he said. I just couldn't believe it. All I kept thinking was how I was going to tell my family that I have cancer." Chondrosarcoma is the most common type of bone cancer and can affect any part of the body. Although the general prognosis is good, those with higher grades face a 60 per cent survival rate after five years. Jason had a grade I tumour and in March 2021, the mass was successfully removed along with 10 cm of his pelvis. He remained in hospital for 11 days afterwards, and on April 19, 2021, was told he was cancer-free. "It was a very difficult experience," Jason said. "I was rarely allowed visitors in the hospital, and all I wanted was to see my family. "But to hear I was cancer-free was extremely liberating. From then on, I started setting myself small goals that were important to me. "And I never wanted to take life for granted again." Jason described the recovery process as a "complete struggle", and for two months, the former sportsman relied on walking aids to get around as he "couldn't run or walk". "I just didn't feel like myself," he added. "But I tried not to push myself and I kept fighting." It wasn't until May 2021 that Jason completed his first solo walk, and August when he took on his first kilometre run. Jason began setting goals for longer distances, 5km in February 2022, and a half marathon in October 2024. "There were a few mental blocks along the way and a few times when I was close to giving up," he said. One particular challenge was in January 2024, when the right side of his hip got stuck in his pelvis. "I was out for six months, and it was a dark time," he added. "I often thought if I was ever going to run again." Despite this, Jason never let it get him down and began training for the marathon 22 weeks in advance. And last Sunday, the cancer survivor achieved his dream by completing the 26-mile race in 3 hours and 46 minutes. He shaved eight minutes off his personal best after competing in the London Marathon in 2017. Jason dedicated the run to Andy's bones fund - a branch of the Bone Cancer Research Trust - and raised £13,000. "It was the most incredible feeling," he said. "I was just thinking about my friends and family to help me push through. "My body was aching and I was shedding tears. "But I hope my efforts get us a step closer to finding a cure for chondrosarcoma."
